Julia's Journey With Spina Bifida A:hover {color: yellow;} function NoRightClick(evnt) { if (navigator.appName.toUpperCase().match(/NETSCAPE/) != null) { if (evnt.which == 3){ alert("GOT QUESTIONS?? E-MAIL 'EM!!!"); return false; } } else if (event.button==2) alert("GOT QUESTIONS?? E-MAIL 'EM!!!"); } document.onmousedown = NoRightClick; to Julia's Journey "The real voyage of discovery consists

not in seeking new landscapes, but in having new eyes."

--M. Proust Meet Julia. She was born with Hydrocephalus and Spina Bifida. To us, she's perfect and a miracle. I created "Julia's Journey" to share our story about having a child born with a serious birth defect called Spina Bifida and a condition called Hydrocephalus. When I first found out, I wanted to educate myself in order to be well prepared. I gathered technical books informing myself of the scientific aspects. But this was not enough. What I really needed was to read other families' stories. I wanted so badly to hear how others dealt with the pain of knowing their child would have many challenges to face. I needed to read about their disappointment, sorrow, grief, depression, anger, anxiety and blame. However, I also needed to read about their joy, happiness, peace, excitement, success and dreams. Yet, I was not able to find this. Therefore, I made a promise to meet this need for other Moms, Dads, Siblings and loved ones. So, I decided to create this web site. I wanted to provide support to others who are preparing to have a baby or already have a special needs child. Throughout you will read stories and information that will hopefully help out and give you some expectations of what's ahead. It will also provide support for new, seasoned parents and loved ones. It will also touch briefly on the scientific aspects of Spina Bifida and Hydrocephalus. However, my main purpose is to share what my family and I felt when we first found out about our daughter and how we continue to feel. I hope you find it comforting, encouraging, informing and strengthing. Additionally and most importantly, I hope this site will make you feel like you're not alone. Remember nothing is written in stone here. Feel WHAT you WANT to feel WHEN you are ready and not a second sooner. If you are just finding out, it's a tough time right now, but in time, your child will show you that gorgeous rainbow of spectacular discoveries. Mine did and she still is. Finally, please e-mail me to talk, cry, laugh, complain, vent, ask questions and tell me your story. I'd love to hear from you, however, due to Julia's, Sammy's and my husband's medical needs, I do not have the time to answer e-mails. Yet, I love to read them and smile with all the stories you send. Our Story Hannah's Story Meet Us Breastfeeding Updates Photos Peppermint Patty Theory Webrings Awards About Spina Bifida About Hydrocephalus Spina Bifida Links Hydrocephalus Links Special Needs Links Links to Other SB Families Guestbook 1998 Entries Guestbook 1999 Entries Guestbook 2000 Entries Graphics by Last updated April 17, 2001 Disclaimer: Please note that the following

information is not for medical purposes. This page is intended for informational purposes only. If you have questions regarding your child's condition,

please consult with your child's physician. geovisit();

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